I am writing to thank all of my past and current supporters. If you have donated, thank you so much. If you can donate, it would be for an amazing opportunity to bring new technology to life. If you cannot donate that is fine too-no worries. Please take a minute to read this update if you can.
Every minute, of every hour, of every day, of every week, of every month, of every year my son Mike and tens of thousands of other children and adults have to think about their Type One diabetes. They think about when to eat, the temperature, there activity or lack of it. The funny thing is no one would know this is on Mike’s mind. Why would they, Mike is healthy, smart and active?
The reality is that Mike’s blood sugar, something none of us ever need to think about, could cause a diabetic coma or ketoacidosis -both having life threatening consequences.
Clinical trials have progressed on the closed loop insulin pump or “artificial pancreas”. Researchers believe this technology could become commercially available within four years. Mike has participated in four clinical studies at Yale, including being on the “artificial pancreas” where he did not have to test or think about his blood sugar for three days! Can you imagine? These were all JDRF studies. 80 cents of every dollar taken in by JDRF goes directly to research.
Next Saturday I will ride 100 miles to support a cure for type one so as to find a cure and improve the lives of those living with Type 1 diabetes. I will do it again in Lake Tahoe this September.
So, about that quote in the subject line.
When I train for my ride and face a big hill I put my head down and just pedal. When it hurts, when I feel like quitting or begin to question why I am doing this I start the following mantra in my head; “He has every right to, He has every right to, He has every right to…” When I get to the top of that hill I finish my mantra with “but he doesn’t”. What I am saying to myself is that Mike has every right to complain about his disease but he doesn’t”. This is Mike’s choice. Mike’s perspective is my reminder that we all have it pretty good-it’s just a choice on how we respond to the hill in front of us.
Thanks for supporting Mike and me.
I hope this finds you well.
So I am doing it again-this time two rides. One is 100 miles Vermont the other is 72 miles in Lake Tahoe. First let me thank you for your past support. You contributed to me being the number three fundraiser in the nation for the Burlington ride to cure Type 1 diabetes.
I do these rides for a couple reasons. One is of course to help find a cure, prevention or to better treat Type 1 diabetes. But after my first ride I can tell you I do this for the experience. The training, the solitude, the camaraderie are great but to be in the presence of this group is both humbling and inspiring. To give is the way.
As you know my 14 year old son Mike has Type 1. Mike is doing great. Mike was involved in two clinical studies at Yale this year for Type 1. Both studies he participated in were sponsored by JDRF. 80% of all funds at JDRF go to research and we see it! This is critical to JDRF, to ensure you know that they keep operational cost to a minimum and have one of the lowest if not the lowest operational spend for a non for profit. None of your money goes to me, my bike or my ride. It goes to help kids like Mike and those you know who are living with Type 1 diabetes.
Type 1 diabetes is an autoimmune disease that causes the pancreas to not produce the beta cells needed to remove sugar from the blood. Without monitoring blood sugars every couple hours throughout the day the consequence can be deadly. Long term daily management can mean a healthy life. You can read past posts here to get more insight as to how Type 1 has impacted our lives-but not slowed us down!
Here is a great link to a brief video on what the future holds. http://www.youtube.com/watch?v=ezop1PUV5P4
This year I had the opportunity to meet with Supreme Court Justice Sotomayor who has lived with Type 1 for over 50 years (Mike got to ask her a question an she was amazing-must be the Bronx upbringing). On a separate occasion I was afforded the privilege to meet one on one with the incoming JDRF board chairman John Brady based on your support of my fundraising efforts.
Life is good because of you. If you can contribute to my goal of 20K than thank you. If you cannot-no worries-thanks for reading. Give to what you can where you can-someone will benefit and that is good.
I will keep you posted on FB. Follow me https://m.facebook.com/cardshouse.
See you on the road.
I wanted to thank you while my feelings from the ride are still fresh in my mind.
It is very hard to thank you in a personal way that both captures or expresses what your selfless act to contribute meant to me. Up until the ride it was about your choice to support a cause, me or Mike. For me, each donation was incredibly touching and motivating. As you can imagine, arriving in Burlington and being in the presence of some pretty amazing people (my son Mike being one of them), it became a bit emotional thinking of each of you and your support of my goal.
Up until this point we as a family had done nothing to become part of the diabetes community. It has been important for us that Mike knows he is “living with diabetes” and that he is not a “diabetic”. That is a clear distinction for us. I sat in on a discussion on riding with T1, which was critical as 30% of the riders in Burlington were T1. They were all mature, intelligent and well aware of the seriousness of a life with T1. It was a beneficial talk for Mike and me too since he plays soccer and downhill skis. T1 may be non-visible and “manageable”, but there is not a day that goes by that at T1 could not die because of T1.
One outcome of many.
You made me the number three fundraiser in the nation for this ride. As of this email $10,951. JDRF is proud that greater then 80% of each dollar goes directly to research. Please know that Michael too does his part with your support to research. Since his diagnosis two and a half years ago, he has participated in three studies at Yale either to improve outcomes or find a cure for T1.
Some of the other equally important outcomes.
When you set a goal, believe in it, work your ass off, you can achieve it.
When someone (you) gives of themselves to another (me) the transference of all that is good takes hold.
When you are open to the experience you will get out of it what you should.
New friends in Bob Buess my training partner and Steve Burgo my Century ride partner.
Get fitted for a comfortable seat.
Spandex pants with butt padding are just not a good look on anyone, especially me.
I do need to thank Jean, Andrew, Will and Mike for their support when I had to leave at 5:30AM or was gone on Sundays missing baseball games for my training rides. You guys never complained.
I loved the ride, the people and everything about this cause. I am thinking Death Valley as my next goal for October 2014.
Much love and appreciation.
The very best to you and your loved ones.
Join me in the fight to cure, better treat and prevent type 1 diabetes!
You may not know that our son Mike was diagnosed with Type 1 diabetes on October 5th, 2011. Mike was 11 years old.
When we left the hospital we went to Wal-Mart to buy containers for his syringes and insulin. (we were going to be so organized and control the whole situation). I remember looking down a food isle and everything looked so different. I cannot explain it. It was surreal.
Imagine having to plan every meal or liquid consumption. What would it mean if you had to consider the temperature outside as extreme heat or cold burns sugar very quickly? Running around outside on a hot summer day will drop blood sugar quickly as we have we found out.. Just think-our activity or lack of it impacts how we regulate insulin and the sugar in our body-his body does not. A simple basketball game is managed differently than standing in soccer net. Think about what happens when the coach moves you to sweeper at half time and now you’re running all game? Skiing means watching for lows hours after a day on the slopes. A high at night can put Mike into Ketoacidosis, causing the organs to shut down before you wake up. A low without a correction is something we never want to experience. Mike has to think about insulin to carbohydrate intake ratios all day, every day. He has to check his blood sugar at least 6 times a day by pricking his finger, 2200 times a year.
Everyone around Mike does not have to think about any of this. Many around Mike do not know this is how Mike lives his life. Mike can never be off. But here is the great news. Mike goes about everyday managing this disease so well, his life depends on it, with a great positive outlook. The good news is that Mike is in great health. Mike had to grow up fast. The reality is that if you ask people with T1D, they will tell you it is difficult and life threatening. And as of today they know they will have to live with Type 1 the rest of their lives.
Did you know that:
- T1D is an autoimmune disease that comes on suddenly and strikes both children and adults at any age?
- T1D has nothing to do with diet or lifestyle?
- Those living with T1D must carefully balance insulin doses with eating and daily activities throughout the day and night?
- Those living with T1D must test their blood sugar by pricking their fingers for blood 6 or more times a day?
So this July I will ride 100 miles through Vermont as part of JDRF's Ride to Cure Diabetes. Along with hundreds of other riders across the country I am contributing to improve the lives of all people affected by type 1 diabetes (T1D). Would you consider supporting my goal of raising ten thousand dollars? I am asking 100 of my friends for $100 dollars each. I will be grateful for any amount you are able to give. No matter the amount, I will list each of you by name on my shirt and take you with me. I am asking for your support. Please donate to my personal fundraising efforts. By doing so, you can help me make a difference for millions of people living with type 1 diabetes.
As the leader of the type 1 diabetes community, JDRF unifies global efforts to cure, treat and prevent T1D. JDRF will not rest until T1D is fully conquered. Won't you please give to JDRF as generously as possible?
Thank you for your support!
Rob and Mike and the whole Card family.