Type 1 Diabetes, are you familiar?
It is a disease that literally shuts down the insulin delivery from your Pancreas.
Blood sugars need to be monitored 24 hours a day, 7 days a week, 365 days a year.
Evey, my 11 year old daughter has Type 1 Diabetes. Evey was diagnosed in September, 2006 at 3 years old. Evey’s fingers are pricked between 8-10 a day. She receives a minimum of 8 insulin shots a day, every day! Constant monitoring of exercise, carbohydrate intake, illness and a list of other variables need to be taken into consideration each time Evey takes a shot of insulin. If her blood sugar levels are too high, she could go into DKA (her blood becomes acidic), which leads to coma and possible death. If her blood sugar levels are too low and not cought, she could possibly die. Even though Evey looks like your typical 11 year old girl that loves to dance, swim and have friends over, she deals with life and death each and every day.
Every diabetec is different, Evey has to keep her glucose levels higher than normal (high 100’s) because she will go low for no reason at all. It happens so often, we have to check her glucose levels throughout the night EVERY NIGHT. Eventually Evey will be on her own and will have to set her alarm clock, several times a night, and hope it wakes her up to check her own glucose levels. Donna and I can protect her now.
As you read, I am not looking forward to Evey going out on her own. I have at least 7 years before I have to deal with that issue.
Evey’s goal as she grows up is to surround herself with good friends that understand Type 1 Diabetes. They will save her life often, I’m sure!
My goal is to help you understand how much we need a cure! In the past we have focused on fundraising for our walk team. We are thankful for all the donations that were made in previous years. This year, we are focusing on raising money for the Ride Team. Our number one goal is to FIND A CURE. With that being said, without your generous donations, Evey would not have the benefits of wearing a CGM (Continuous Glucose Meter) or an Insulin Pump. These technologies help manage and live with diabetes a little easier but is in no way a cure. JDRF has come a long way and is continuing to move forward with an artificial pancreas. That would be yet another step closer to a cure.
Over the past few years, I have been riding with the support of Donna, Evey, Janey, Riley and Ashley with Hope on 2 Wheels and Riding on Insulin to help raise diabetes awareness and encourage kids to take control of their diabetes, not let it control them. I also participate with the JDRF Ride to Cure around the country. This year I am riding my bike 110 miles through the desert of DEATH Valley California to support Evey to find a CURE.
The 2014 Death Valley ride will provide challenges for riders incorporating the varied desert terrain that make Death Valley so unique. From rolling dunes to salts flats, the Ride will challenge you through both its terrain and its extreme weather. From below sea level to hundreds of feet above. This ride as other rides i do for diabetes is a one day uphill battle to complete. Evey battles that daily.
I am asking for your financial support. If you don’t have a top charity, please make the JDRF and Evey your top charity and DONATE as MUCH as you possibly can. If you have a top charity for personal reasons, I am still asking you to keep the JDRF as close to the top of your charity budget as you can. No DONATION is too small.
On behalf of the entire Bell family, thank you!
Hope on 2 Wheels
Thursday the 30th of July was our third year of Hope on 2 Wheels Ride. This year we rode 141 miles from Camp Najeda, a diabetes camp, in Stillwater NJ to Hershey Medical Center. Click video below:
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Dan & Tammy Johnson
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R. & H. Newman Family