How long do I have to have diabetes for? Tyler asks me this question about once every few weeks. Usually it’s when we’re changing his infusion site (where the needle from his pump goes into his body) every other day. I really wish I knew the answer to that question. I wish I knew whose lucky dollar we needed to find a cure.
Tyler’s Type 1 Diabetes (T1D) has not gotten the best of him (or us). We are going on 15 months and what I see is that he’s learning to adapt. Impressive for a 6 year old! We celebrated his “Diabetes Birthday” in May at Legoland, so now he says he’s 7 like Brady. Has he found a way to be older than his older brother?
Tyler started 1st grade last month and there is no full time aide like there was in Kdg. Thus, there are higher expectations for him yet he's been doing great! He is very lucky to have a wonderful full time nurse at his school who cares about him as much as we do. We always hope for good results when he tests his blood sugar, and we make changes to his hourly insulin rates and carb ratios that sometimes even work. Many days, I think we have a pretty good handle on “all this”.
Then, lightning strikes. Last weekend, one of the buttons on his Insulin Pump stops working. We can’t control his pump. At all. He’s about to go to bed and he’s not receiving any insulin. The pump is beeping like crazy, telling us something’s wrong, but it’s still not working. So much for enjoying a nice weekend. Again, for the second time in two years, I have no idea what to do. I’ve had the same insulin pump for 9 years without any issues. It’s the difference between a 6 year old boy and well, somebody who might be over 39 now…. Anyway, we call the doctor and she tells us to wake him up every two hours and give him a correction shot for control until our new pump comes. Seriously??? Are we back at the hospital again?? Luckily, we made it through the night without incident and our pump company had someone drive through the night so that we could receive our new Pump on Sunday morning of Labor Day weekend. BUT, it was a friendly reminder that while the Insulin Pump is great for controlling one’s diabetes, it is NOT a cure.
On a side note, last month I hit my THIRTY year mark of having diabetes. I’m not sure if I should be proud of this or just sad. The good news is that I still do not have any side effects from having diabetes. I personally think T1D is afraid to fight me...and it should be!
You can help us fight this disease by supporting Tyler (and me again) this year as we take part in JDRF's Walk to Cure Diabetes. As the leader of the type 1 diabetes community, JDRF unifies global efforts to cure, treat and prevent T1D. JDRF will not rest until T1D is fully conquered. Now, more than ever, you can make a crucial difference. Won't you please give to JDRF as generously as possible? I would be honored if one of your dollars found the cure!
Please support JDRF, and donate to the 2013 Ron Santo Walk to Cure Diabetes. The walk is on Sunday, October 6th, 2013 at 8:30AM on the Lakefront.
For online donations, please click here: http://www2.jdrf.org/goto/TeamTylerChambers
Select “Donate to this Team or Walker”. Select Team Tyler Chambers.
You can also write a personal check made payable to JDRF, and mail to Sheila Chambers, 513 Rugeley Road, Western Springs, IL 60558.
Thanks in advance for supporting the JDRF. I really hope there is a cure SOON! Hopefully most of you still have your Team Tyler t-shirts from last year (and have been wearing them proudly!) But we have many more shirts for new walkers! Please let me know if you can walk with us this year. You have no idea how much it means to us when you can.
Thank you for your support, and we will see you on Walk day!
The Chambers Family
Jamie, Sheila (T1D since 1983), Brady (7), Tyler (6, T1D since May 2012), Colleen (4)
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Aunt Susan, Uncle Tom, Alexis & Danny
John and Katie Carroll