My Son Died on July 5th 2010
My son went thru so many changes that summer but no one would have ever seen this coming.
On July 3rd 2010 I laid out on West Haven beach with my children watching the fireworks. Afterwards, while we waited in traffic my son told me his chest hurt. Knowing my son has Acid Reflux I figured it was just heartburn. He went to sleep fine that night. The next day he was ok. Later that night, he complained again of heartburn. We went home laid done and he said he felt fine. On July 5th 2010 I woke up in a good mood and started cooking breakfast for my boys. I made my son his favorite breakfast sachichas and eggs with bacon, sausage, and toast!! When I put the plate in front of him he grabbed his chest and said he couldn't breathe and he couldn't swallow. I called my mother and told her I was taking Anthony to the hospital and that I would drop Yoyo off with her.
On July 5th 2010 I walked into the Waterbury Hospital Emergency room. The nurse saw him right away, he was holding his chest real hard. What you dont know is that my son was born with a Heart Murmur. The nurse then took my son straight in the back to set him up for a cardio gram. As the nurse was putting on the chest stickers another nurse walked in. She checked his blood sugar, as the machine beeped she walked out of the room. I didnt think anything of it. Then I saw her run back towards the room with 3 doctors and another nurse and a stretcher. They just lifted my son off the machine and on the stretcher they had. They ran my son down the hall into a room and immediately started giving him needles and hooking him up to machines. I have NEVER been so scared in my life!! I kept asking them whats wrong, what was going on!! I Screamed and cried I felt everyone looking at me. The nurse held me outside the room telling me to calm down that they will explain everything to me in a few!!! I couldn't stop crying!! I heard them talking saying he had a Diabetic Attack. I remember the first person I called was Rachel, I knew she was home from work but she didnt answer. I then called Ernest, when he answered the phone I was crying so bad that you couldn't understand what I was saying. But, he knew where I was and knew something was wrong!!!
After what seemed like forever the doctors came out. He asked me if I knew my son had Diabetes. I had no idea what he was talking about!! He told me my son had a Diabetic Attack and that his Blood Glucose number was 799. A Number that I will never forget. He told me to try to relax that he needed to run some tests and then he would explain more. I walked into the room and saw him, he looked so weak!! I couldn't stop crying though. I sat on the side of his bed and held his hand that was covered in iv, tape, and his pulse monitor. Then Ern and Rachel showed up. A few minutes later my mom showed up too!! It was a huge shock for all of us!!! We all had this scared blank look on our face with tears rolling down!!! Standing in the hallway you over hear ppl talk. I heard a few nurses saying it was a miracle he was still alive!! Ppl die from diabetic attack's over 300. My son survived a diabetic attack at 799.
I remember his face when we told him. I Also remember the look on his face when the doctor told him he wont be able to have pumpkin pie any more (his favorite). I remember my brother trying to stop the tears by blowing up gloves like balloons and throwing them around the room. I remember the first time I gave him his needle.
Over the last year and a half my son has been thru so many changes. He gained back the 20lbs he lost from being sick. Though we've had some bad moments, close calls, and quite a few hospitalizations hes doing remarkably well for his condition. Statistics say that 1 in 400 children will have type 1 Juvenile Diabetes.
Here are some more facts you dont know..
It Affects Children and Adults
Type 1 diabetes strikes people at any age. It comes on suddenly, causes dependence on injected or pumped insulin for LIFE, and carries the constant threat of devastating complications.
Needs Constant Attention
To stay alive, people with type 1 diabetes must take multiple insulin injections daily or continually infuse insulin through a pump. They must also test their blood sugar by pricking their fingers for blood six or more times a day. While trying to balance insulin doses with their food intake and daily activities, people with this form of diabetes still must always be prepared for serious hypoglycemic (low blood sugar) and hyperglycemic (high blood sugar) reactions, both of which can be life-limiting and life threatening.
Not Cured By Insulin
While insulin injections or infusions allow a person with type 1 to stay alive, they do not cure diabetes, nor do they necessarily prevent the possibility of the disease's devastating effects, which may include: kidney failure, blindness, nerve damage,amputations, heart attack, stroke, and pregnancy complications.
Difficult to Manage
Despite paying rigorous attention to maintaining a meal plan and exercise regimen and always injecting the proper amount of insulin, people with type 1 diabetes face many other factors that can adversely affect efforts to tightly control blood sugar levels. These factors include stress, hormonal changes, periods of growth, physical activity, medications, illness/ infection, and fatigue.
As many as three million Americans may have type 1 diabetes. 1 Each year, more than 15,000 children and 15,000 adults - approximately 80 people per day - are diagnosed with type 1 diabetes in the U.S.2
On October 4, 2011 my son was blessed with an insulin pump. A remarkable device that constantly streams insulin into his body 24hr a day!! Im truly grateful to JDRF for the continuing efforts to help find a cure and more advanced treatments like this device!! I would like to thank the scientist around the world that as your reading this they are sitting in a lab searching for a cure!! They send me letters every few months updating me on their efforts!! They give me hope!!
On top of everything ive been blessed over this time to have met some Amazing people. Anthony has a great doctor that has been dedicated to help him thru anything and has truly gained an attachment to him. The whole staff at CCMC has been amazing im truly blessed to have such a great team care for my baby!!! Ive also meet with A few families that gave me so much strength!! I meet Gina last year an amazing mother with two children that have type 1 diabetes. Rosalie who comes from a family of diabetics and her and her six year old have type 1 diabetes.
Im blessed to have my son and the support of my mom, brother Ern, and Rachel. Also so many other family and friends that have helped me thru this.
Thank you for taking the time to read my story and understand all I go thru. Next time your at a store thats accepting donations for JDRF Juvenile Diabetes Research Foundation or theres a fundraiser think of my Anthony and soooooo many other kids out there that are suffering everyday.
Ill continue to pray for a cure and I know that one day ill get that phone call or that letter that a cure has been found. I know it will happen one day.....
Mommy loves you Anthony!!
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