As most of you know, Ashlynn was diagnosed with Type 1 Diabetes when she was 18 months old. Since then, Ashlynn has endured over 12,500 finger pricks. In addition to her rigorous blood testing and insulin doses everything she consumes must be weighed and measured. Matching her insulin dose to her carb count and balancing that against her blood sugar is a complicating task. Diabetes is a life long disease, one that never sleeps and never takes a vacation. Which for the first time since her diagnoses we finally did – we took a family vacation to Disney World!
Being on insulin is only life support. It is not the cure. No matter how much due diligence we have with Ashlynn’s diet, exercise, and tight blood sugar controls, she and the 1.3 million others suffering from Type 1 diabetes are more likely than you and I to develop blindness, amputation, nerve damage, kidney failure, heart attack, stroke, a 15 year less life expectancy, and a host of other complications and issues. This is the heart wrenching aspect of this disease.
Ashlynn is now using an insulin pump. It has definitely helped us manage her blood sugars (both short and long term) and is a more accurate way of dosing insulin. She still has to have the insulin pump site changed on her body every 3 days and has had over 250 site changes. Though the insulin pump may be a very useful tool for Ashlynn and us, it is still nowhere near a cure for her.
The Juvenile Diabetes Research Foundation or JDRF has supported cutting edge research for Type 1 diabetic since 1970 with over $600 million raised by volunteers. JDRF is very efficient with 87 cents of every dollar going directly toward research putting them in the top ten charities worldwide. One of JDRF’s largest fundraising events is the “Walk to Cure Diabetes”. We have formed a family walk team named “Ashlynn’s All-Stars” and will raise money towards this cause. This year’s walk will be held on Sunday, October 6th at Forest Park in St. Louis. Please join us. We walk for all sorts of reasons but mostly because it is the only thing we have control over when it comes to diabetes. Ashlynn loves her walk and loves to have family and friends join us.
If you are interested in helping make a difference for Ashlynn you can:
¨ Join our family walk team, known as “Ashlynn’s All-Stars” which consists of family and friends who collect donations and walk with us.
¨ Make a donation to us by using the link on this page or by mail to
2310 Hale Dr.,Alton,IL 62002
Checks should be made payable to JDRF
¨ Not only can you make your own donation, you can contact others in your circle of family and friends to donate as well. If you choose to raise donations yourself, you may forward this letter or write your own.
Please understand, we are not trying to have a pity party. We truly believe that for every stumbling block we hit in life, something good will come of it. As parents, it is our instinct from the moment our kids are born to protect them from every harm. We must do everything in our power to help find a cure for Ashlynn. Our daughter’s life depends on insulin, and CURE depends on everyone.
Thank you so much for helping our family team raise money for a cure. Together we can make the cure a reality. We look forward to hearing from you soon!
Nathan (8), Ashlynn (5), & Daniel Bennett (4)
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Home Nursery, Inc.
Mr. Mark Henderson
Mrs. Amy Khuhro
School St. Ambrose