We are participating in our 3rd annual JDRF Walk to Cure Diabetes in Forest Park. Since Joe was diagnosed, we have tested his blood sugar over 7,000 times, had 8 Hemoglobin A1C's, 3 IV's, several thousand insulin injections, nearly 200 insulin infusion set changes, and several hundred continuous glucose monitors placed into his arm. That is a grand total of over 10,000 sticks since diagnosis at 4 years old. He is now 6, and he does it with a smile on his face. To think of all of the frustrations he has faced as we upgraded to new equipment, he has taken it like a champ. We are so proud of how great he is doing.
As we kick off our fundraising campaign, Joe is finishing up kindergarten. He has some pretty amazing people at his school who make it possible for him to stay at Our Lady Queen of Peace Catholic School. The school does not have a school nurse, so several staff memebers volunteered to care for him. JDRF sent an educator to teach the staff. They have been amazing in taking care of him at school. It is great for us to know that he is in good hands when he is at school.
Joe has been on an insulin pump for about a year. He is doing great with it. We still have highs and lows, but they do not seem to happen nearly as often as it did when on injections. His Hemoglobin A1C's (a lab that is basically a report card of blood glucose control for the past 3 months), have continued to improve with each visit. Joe is still seeing Dr. Galgani, his pediatric endocrinologist. Dr. Galgani has been wonderful with Joe. Joe really looks forward to seeing him! Dr. Galgani gave Joe information about a week long camp for children with diabetes. Joe will be able to go next summer and is really excited. I'm not sure how I feel about sending him to camp for a week, but I do know that children with diabetes are taught how to be more independant while they are there. They learn about managing their own disease, improving their diet, exercise, etc. while swimming, playing ball, rope climbing, and doing many other activities that would be fun for any child. The camp looks like a lot of fun & Joe will be going to his first diabetes camp in the summer of 2014!
While Joe hates diabetes, he loves having this walk to help find the cure! There is so much amazing research that is being done & there is even an artificial pancreas that is in trials. These things all happen because of donations. JDRF has been such a support to our family since his diagnosis. We hope that you can support our team so that Jospeh's wish of a cure will come true some day.
Welcome to my personal JDRF Walk to Cure Diabetes fundraising page!
I'll be taking part in this year's Walk to raise funds for the millions of people living with and affected by type 1 diabetes (T1D). The money I raise will help JDRF fund critical research to progressively remove the impact of T1D from people's lives until no one has to fear developing the disease.
Type 1 diabetes is a life-threatening autoimmune disease in which a person's pancreas stops producing insulin - a hormone essential to the ability to get energy from food. It strikes both children and adults suddenly and changes life as they know it forever. It cannot be prevented and there is no cure.
JDRF is the largest nongovernmental funder of T1D research and the only global organization with a strategic research plan to fight T1D. This science is complex and costly, and every dollar JDRF is able to direct toward research comes from donors like you.
Please support me and donate to my Walk fundraising campaign. Your gift will make a difference for millions of people affected by this devastating, life-threatening disease. Won't you please give to JDRF as generously as possible today?
Thank you for your support!
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