Madilyn, being a kid first, at Halloween as a Candy Fairy.
We will turn Type One into Type None
Welcome to Madilyn's JDRF Walk to Cure Diabetes Team Page! We are taking the steps to help achieve JDRF's mission: to find a cure for diabetes and its complications through the support of research.
I was diagnosed with type 1 diabetes when I was 18 months old. At 2 years old I began pumping with an insulin pump, and while I no longer have to endure 4 shots every day, I do have to check my blood glucose 5-8 times a day and get a 'big stick' every 2-3 days when my pump infusion site is changed. At 8 years old, I am much better at holding still and being brave during site changes, but even after 6 years, I still get pretty anxious for pump site changes. -Madilyn
Type 1 diabetes is a 24 hours a day 7 days a week chronic disease. It is not something Madilyn will ever 'grow out of'. Contrary to popular belief, it is not just about sugar, in fact its not much about sugar at all. Its actually about carbohydrates, counting them accurately in all foods consumed, and balancing them with the correct amount of insulin. But the truth about living with type 1 diabetes is no matter how diligent you are with counting carbohydrates and weighing and measuring foods, giving insulin via a shot or insulin pump is NOT a substitution for a working pancreas! Highs and Lows are an inevitable part of the disease and often come about unexpectedly. This is what makes this disease so scary; you can do everything right and still experience potentially life threatening complications. It is very frustrating!
As you can imagine, it's typical for parents of a child with type 1 diabetes to feel that their child's future is uncertain, but what you may not understand is the child may also feel this way. Madilyn at the young age of 8 has expressed this sense of uncertainty. Anyone who knows Madilyn will agree she is a very intelligent kid. And though she doesn?t understand everything about this disease, she is very active in her care. In learning about diabetes, she has discovered that diabetes could be fatal to her. She said to me, ?so mom if my blood sugar goes to zero then I would die right?? I'm not sure if this is a harder truth for me to swallow or for her. What parent wants their child to worry about their mortality? And worse yet, what child should ever have to contemplate their life ending? This is why we are so passionate about supporting JDRF research. The money our JDRF Walk Team raises will go directly to support this life-changing research.
That's why this is such a crucial time, and why I'm asking you to join me in walking, and raising money that will speed these scientists toward that cure. Every walker, and every dollar, brings us that much closer.