Dear Family and Friends,
On 2/8/2010, at the age of 26 months my son, Jack Murphy, was diagnosed with type 1 diabetes (T1D). This day changed our family’s life forever. Type 1 diabetes has no cure. Many people believe that insulin is a cure, but it is not. Type 1 diabetes needs constant attention. To stay alive, people with T1D must take multiple insulin injections daily or continually infuse insulin through a pump. Each day, every day, for the rest of their lives. We will have to carefully monitor food and insulin intake, as well as exercise to maintain a careful balance and avoid high or low blood sugar reactions that can be life-limiting or life threatening.
Jack wears an insulin pump 24/7. Because he is such a brittle diabetic he also needs to wear a second monitor (a CGM) (yes-2 IV like sites on his 5 year old belly) that helps guides us with his blood sugars.
Jack is now 5 1/2 years old and just started Kindergarten just a few weeks ago. This has brought on a whole new list of challenges and worries for him and our family. For the first time, he is being taken care of by a school nurse (meaning not mommy) and a 1:1 aid. Even his life at school is not like other children. How many children need a one to one aide at ALL times to make sure he stays safe and healthy and does not pass out from a low blood sugar? How many children go to the nurse 5-8 times a day, missing school and activites, because they need a blood sugar, insulin, or blood sugars have that so out of range can not concentrate and stay in a classroom? How many mothers get called 5-8 times a day by the nurse, never knowing if this is the emergency where she needs to run into school ASAP to help him? To stay this has been a hard transition is an understatment. As a mother of a T1D, even while he is in school, I must remain within minutes of his school is case of an emergency!
When jack started school I think the staff thought they were doing to get a "sickly" child who understands at a young age life can be unfair.......his amazing teachers and aides were shocked to find a fun loving, kind, sweet, funny child who has no idea he is different from other children. He thinks everyone is his friend and is proud to show off his tummy with his two sites-he is a special kid who I say is "my angel from heaven."
I understand this is the forth year we are asking for donations for his walk--I truly believe in the JDRF and appreciate any amount you and your family can afford. Your thoughts, kind words, and donations are so appreciated by the entire Murphy Family.
Thank you for your support of my son and the millions of children living with T1D.
Our family is taking part in the JDRF Walk to Cure Diabetes on 10/6/2013.
Jack's Big Race