Hello Family and Friends,
Here I am sitting at my computer in another August trying to decide what to say to you that is different from other years. What can I say to convince you to support our cause? I popped in theDVDthat was created for a JDRF fundraiser several years ago. It features pictures of local kids that have Type 1 Diabetes with Maggie included. The background music is Rascal Flats, “My Wish.” If you are familiar with the lyrics of the song you can imagine how powerful that is coupled with pictures of children that are battling this disease.
What this did was bring to the forefront of my mind the very first JDRF fundraiser Frank and I attended. It was less then one year after Maggie was diagnosed. When we were seated for the program portion of the event, what came next we will never, ever forget. We watched a video that was made for this event by a family who had just lost their twenty one year old son to diabetes. He was away at college and his roommate was away for the weekend. His blood sugar dropped so low he lost consciousness and without anyone there to help him he died. I don’t think there was a dry eye in the place. Frank had to leave the room. I sat at that table and cried for that family and mine. I hated JDRF for doing that and swore I would never attend another one of their events. I prayed every day from that point on that there would be a cure before Maggie left my side and went to college. Yet here I stand at the threshold of that big event and there is no cure.
Do you remember when your children were babies and you had that monitor by your bed at night? It gave you the peace of mind you needed. You could hear their quiet breaths or movement of the blankets. I want a similar device that has a frequency great enough to travel the several hundred miles from her college dorm. What I have to settle for is the latest in diabetes technology. That is where JDRF comes in to play. I got over my anger and realized they raised a lot of money that night pulling at everyone’s heart strings.
In the six short years since Maggie has been diagnosed we have seen tremendous advancement in diabetes treatment. Much of this research is funded by JDRF and Maggie has benefited. In the last year she has started using a new insulin infusion pump without tubing. It is better suited for her active lifestyle. Her latest request is for aCGM(continuous glucose monitor). When she was diagnosed this device was still in FDA approval. Two years ago most insurance companies were not covering the cost of this device or the weekly replacement supplies. I am currently working with the company to get this device for Maggie. This is my equivalent of the baby monitor. These are the things that are made possible by your donations. In the five years we have walked as a team you have helped us to raise just under $43,000. That is amazing! We want desperately to hit that $50,000 mark this year.
Maggie has been working on college application essays and since most of them ask to write about a personal experience she has been writing about diabetes. I will conclude with an excerpt from her essay. “The love from my family and friends and their acceptance of the abnormality in my life has shaped me into the person I am today. I am strong and confident and I wear diabetes with pride. I wouldn’t change a thing.” Thank you for your continued support of Maggie and our family.
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