Mac, Andy and I are participating in the JDRF walk this weekend and we are hoping that some of you reading this would be willing to make a donation. While there are lots of wonderful charities in the world, JDRF is especially impressive in its effectiveness. Through its grants, major advances have been made in recent years. Clinical trials are underway on several different approaches that would fundamentally change the way Mac lives her life. These solutions would allow Mac to be normal for years at a time or to use technology that replaces all of the most critical aspects of her defective pancreas. Other studies focus on everything from advance detection and prevention to complete cure. Unfortunately it's a long, expensive path from research to trials to general availability.
Mac needs your help. The benefit from your contribution may not be immediate but it IS important, long term and broadly impactful, for her and the many like her. Mac now wears an insulin pump which means that rather than injecting her multiple times a day, we now only have to change the infusion site once every third day. Changing the "pod" is painful and wearing it is extremely inconvenient, but it allows us much better control over her blood sugar levels. Of course she still has to prick her fingers constantly to test her blood sugar. While the improving technology is improving her life, she's pretty much lost all hope of having a normal childhood. Every play-date, party and field trip comes with exhaustive instructions and worries. Her friends' parents think twice before having her visit... sleepovers are particularly challenging. The bottom line is that she can't do the simplest things...like eating or playing...without measuring and testing. It's a very deliberate lifestyle for a 9 year-old.
I nearly lost Mac last year, when she was hospitalized for diabetic ketoacidosis. After being released from the ICU we were, at first, so busy adjusting to the new requirements of her treatment that I didn't comprehend how dangerous her condition really is. It took losing Izzy to shatter my belief in a world order in which children don't predecease their parents. Knowing and understanding just aren't the same thing. But now I do understand that I have to do everything I possibly can to help her, and right now that means asking my friends and family to help as well. Giving is tax deductible and quite easy. Just click "Donate" above.
Whether or not you can give now, I just want thank everyone very much for all that's been done for us this last year or so. We aren't good at showing it, but we really, really appreciate it.
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