Hello and thank you for checking out my walk page. It's that time of year again! We are gearing up for our annual Juvenile Diabetes Research Foundation's (JDRF) Kohl's Walk to Cure Diabetes at the Miwaukee County Zoo. This will be our fifth year walking in it. So once again we are asking for your support of this cause. With your continued support, we hope to put an end to Type 1 diabetes and find the cure. Over the past four years, we have raised over $35,000 to help find the cure. Ethan's Zoo Crew is on the move again!
As most of you are already aware, I was diagnosed with Type 1 diabetes on February 6, 2009. Since then it has been an up and down battle with this disease. I have my good days, but I also have my bad days. I have had to miss baseball games (my favorite sport) because of low blood sugars, I have not felt well because of extremely high blood sugars. I have to count every carbohydrate that I put in my body. I have become really good at managing this disease on my own with the guidance of mom and dad. I have been on an insulin pump for over a year now and that has made managing diabetes a little bit easier, but yet a little more complicated in the same breath. Please remember, the insulin in this pump is NOT A CURE, IT IS MY LIFE SUPPORT.
What exactly is an insulin pump? Basically, an Insulin Pump is a miniaturized version of a hospital I.V. An Insulin Pump contains a cartridge filled with insulin, a computer which allows the user to time and adjust the administration of insulin to their bodies, and a small motor to drive the cartridge. Attached to the end of the cartridge is a sterile tube (infusion line) fitted with a needle which is inserted into the soft tissue of the lower abdomen. The needle is removed, leaving a plastic catheter that attaches to the tubing. The entire fluid system (infusion set and insulin) must be changed every few days to maintain a sterile environment and avoid infection at the infusion site on the abdomen. This means, instead of having to take 4 to 5 shots a day, he only has to insert the infusion set once every 2-3 days. He still has to test his blood sugar 10-12 times a day via finger pricks. That adds up quickly: 10 times a day, 70 times per week, 300 times per month, and 3600 times per year. Ethan's pump is about the size of a cell phone or a pager and he wears it in a Spibelt pouch around his waist.
This past year I have been able to experience some pretty cool things. I recently attended Slam Dunk for Diabetes basketball camp. This was a camp for children that have diabetes. It was very cool getting to know some other kids that go through what I do each and every day. I also got to meet Dominque Wilkins (my dad was very jealous) and Bango (the Milwaukee Bucks mascot) at this camp. I have also attended Webelos summer camp for 4 days/3 nights. I tell you this stuff because even though I have this awful disease, there is nothing that I can't do. I also want to say that I have some pretty awesome friends that have parents that are willing to take me places and watch over me when I'm away from my parents. Another pretty cool thing that I got to do this year was stay with my grandma and grandpa for several nights without my mom and dad. My grandma even had to change my infusion site, I think she did pretty good for her first time.
I have a simple request to each of you and that is to donate what you can to help provide the necessary funding to research a cure for diabetes.
Type 1, or juvenile diabetes, is a devastating disease that affects millions of people, a large and growing percentage of them children.
There is some good news, though. JDRF is our best hope for finding a cure. It funds more type 1 diabetes research than any other charity worldwide and it's making progress along many promising paths toward better treatments and a cure.
Now, more than ever, you can make a crucial difference. Won't you please give to JDRF as generously as possible? Together, we can make the cure a reality!
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Mr. David Leider
Randy & Diane McDonald
Steve and Sarah
The Other IT Guy's friend- Angela Nicloy
Uncle Bob and Aunt Renee