Bob and I are learning about the unique challenges type one diabetes presents in a teenage boy (as if parenting a teenage boy isn't hard enough as it is!)
Challenges such as: 1) he is completely sick of having diabetes and frequently "forgets" to do all the admittedly tedious tasks to take care of himself 2) he is completely sick of his parents nagging him about all the tedious tasks he has to do to take care of himself 3) he is growing like crazy, hungry all the time, busy with sports and his blood sugars and hormones are consipiring against him a lot of the time.
Thank goodness for JDRF. You all know that almost since his diagnosis (January 13th 2009) both Bob and I have been involved with JDRF. We like their commitment to researching type one diabetes and improving the lives of those with it while also doing everything scientifically possible to find the cause and a cure. We also really like their fiscal responsibility and the fact they are a top-rated not-for-profit organization. We couldn't ask anyone to support JDRF financially if it were otherwise.
We are the beneficiaries of JDRF-initiated scientific advances such as the first FDA approved (stage one there are a lot more stages to go but stage one works for now) "artificial pancreas" - in other words, a Constant Glucose Monitor (CGM) that Alex now wears in addition to his pump that turns off his pump if his blood sugar drops below a certain level. The CGM also eliminates a few of his blood testing finger pokes each day and we can monitor the trends in his sugar levels (i.e., if he is rising or dropping and how quickly). It is amazing - ask him to show it to you.
We are also really excited about promising research going into human clinical trials this year (alas you have to be 18 or I'd have him on this trial list) for an inserted device (like a high-tech teabag) that simply does the blood sugar/insulin stuff in the body just like ours does - without him having to do anything. It is called encapsulation and if it works, it is close enough to a cure for me. This implanted device is anticipated to work for 18 months to 2 years without being replaced. Truly a miracle.
They are doing a lot of other things too but all of it requires funding. Those scientists need to continue to receive their research grants and we want them to have them. So, won't you join us?
Please walk with us on May 10th at Cheney Stadium and if walking isn't your thing or you can't make it, please consider joining our team anyway. Any financial contribution amount is appreciated and is going towards science that has a real impact on our life (and others).
Finally, thank you for all of your support of Alex and our family as we live with this disease. We know that we receive a lot of support and are very appreciative.