Barbara Scully

RAISED:

$910

GOAL:

$1,000

Join me in the fight to create a world without type 1 diabetes!

 

Welcome to Erin Debra's JDRF Walk to Cure Diabetes personal fundraising page!

Erin’s Energizer’s

 

August 15th, 2013 forever changed my family's life, but mostly for my 7 year old daughter, Erin Debra.

She was diagnosed T1D.

 

It was all so extremely over-whelming hearing our family Doctor say… "Go to Seattle Children's- NOW." 

My children have always been healthy- apart from your typical cold/ flu or allergies, but hearing the severity in our Doctors voice- Time was of the essence.  After a brief moment of weakness breaking down in my doctors arms, I was able to reach deep down into my soul and muster every ounce of strength I had and needed… to get US threw the next however many days.

 

While driving the 30 min. to the hospital, I kept looking in my mirror at Erin.  Watching her breathing, yelling at her to 'stay awake' as her eye’s flickered into the back of her head.   It was a very intense and frightening time for me.

When we arrived, Erin was so exhausted and weak- I had to carry her into the ER.  Thankfully, our Doctor phoned ahead- so they were prepared for us; 4.5 hours later we were rolled into our room.  The Glucose meter which was used at our Doctors office read ‘High’, upon admittance Erin’s actual Blood Glucose was 980 and she weighed 38lbs. 

Just the month prior she weighed 52lbs; she lost 14lbs!  Her body was eating itself to stay alive.  This is what T1D does if you do not have insulin to break down your food.  She wasted away in front of my eyes and I didn’t even see it!  I still have a hard time with that one.  How could I not see it?                                   I was watching her eat, and I remember thinking ‘Growth spurt’ but little did I know- Organ failure was culprit.   

For you and I not living with T1D- Our BG (blood glucose) is roughly 100.   Erin amazed me, much like she does every day, but to hear 980+ and not any worse.  Yes, upon finding out, it could have been A LOT worse.  But for her thankfully, she wasn’t…

I met a group of 12 doctors and specialists all starring me down in a small private room- the first time I have ever felt so fragile, weak or insignificant before.  They introduce themselves as Erin’s health care ‘team’.  This group of Doctor’s & specialists are the ‘Behind the Scenes’ network of wonderful people helping, encouraging, improving & advancing Erin’s life daily.

We were hospitalized for 3 days and within that time period I was educated on our 'New Normal':  Nutrition labels, fats, proteins, carbohydrates- complex & simple.   Instructions:  Proper care for your Insulin, syringes, vials and location and the importance of changing the location of each ‘poke’.    Meal planning: Stressing the importance of schedules and weight per item of food. 

I was also given books, upon books to read.  Are you over-whelmed reading all of this yet?  I am, just listing all of it.  All of this, its second nature to Erin and I now and Life is good!

Erin and I personally do not want to just improve our life, but also for the millions of individuals living with type 1 diabetes (T1D).   For Erin, her life is happy and she is ‘healthy’ thankful to JDRF.

The money WE raise will help JDRF advance its strategic research plan to end T1D.

T1D is a life-threatening auto-immune disease in which a person’s pancreas stops producing insulin, which the body needs to get energy from food. Managing the disease requires constant carbohydrate counting, blood-glucose testing, and lifelong dependence on insulin.  Erin has to poke her fingers 8-10x a day checking her BG.  Her poor lil’ finger tips are calloused but with T1D there are no days off, and there is no cure so, this is what she must do to remain healthy and balanced.  JDRF is working every day to change that. And, as the largest nongovernmental funder of T1D research, every dollar JDRF directs toward its research plan comes from donors like you.

Please support my commitment and donate to my Walk fundraising efforts today. Your gift will make a difference for millions of people affected by this devastating, life-threatening disease.

 

Thank you for your love, commitment & continuous support!

Brian, Barbara

Aubrey, Erin Debra, Gabe & Michael Scully

(Scully6)

join my team Donate to Barbara

WALK DETAILS

Date and time

May 10, 2014
Registration: 7:30 AM
Starts: 9:00 AM
Length of walk: 3 miles

Location

Cheney Stadium
2502 S Tyler St.
Tacoma, WA 98405

MAP

CONTACT

Emma Conway

econway@jdrf.org
(253) 350-1046

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