Join me in the fight to create a world without type 1 diabetes!
Encapsultion Video: http://youtu.be/mAjFVtymkmc
On March 5th of 2009, when our pediatrician told me that I would need to take my son Evan to the Emergency Room immediately, I believe that I may have been in a sort of shock. I began making arrangements for our other children. I chose the hospital that would work best for us. I even planned a stop at Toys R Us for Evan and Staples for a pen and notebook for myself. It was terrible. My five year old boy had to be tethered to a backboard so that they could insert an IV and start insulin. He screamed out for me to make them stop. His pleading eyes and cries for help shattered my heart into pieces that will never be recovered. Our week at DuPont included an onslaught of doctors and nurses trying to teach us years of anatomy and physiology and pharmacology at a time when all we wanted to do was wake up from this nightmare. We practiced giving shots and taking blood sugars. The most difficult thing, though, was trying to coerce our little man from under the sink in the hospital bathroom so that we could give him another shot. Even in all of his turmoil, when offered to give Mommy a shot to show her how he felt, he refused. He wouldn’t do it. He wouldn’t make his Mommy feel the way that he felt.
Things did not improve much when we got home. We were overwhelmed by Diabetes, a diagnosis of Celiac’s disease, which affects 1 in every 10 Type 1 diabetics, and our daily lives with our four children. Poor Ev, he put on a brave face, but there were alot of tears. That was when we found JDRF. They sent Rufus, a bear with diabetes.. and Rufus brought us hope. JDRF has been a leading force in Type 1 research for over 40 years. What began with parents just like Thomas and I, has grown to a worldwide leader in funding research for a Cure. Not only does this organization influence private donations from such generous people like yourselves, but JDRF is involved in securing government funding for diabetes and influencing companies to continue to make breakthroughs and invest themselves and their resources to finding a cure. For over 40 years JDRF has touched the lives of so many. We are just glad that they touched our lives.
Evan has been battling his disease every day, 24 hours a day, 7 days a week, 365 days a year since March 5, 2009. He deals with not feeling well, hospital visits, insulin shots and pump therapy, finger pricks, missing school, missing sports and never NOT ONCE being able to forget that he has a disease. Evan has checked his blood sugar more than 13,200 times since he was diagnosed. He has been hospitalized. He has endured 1,225 shots per year until he began pump therapy. He now inserts a cannula under his skin to have insulin automatically enter his body through a device that is literally attached to him. This is his life line. Insulin is not a cure. Insulin keeps him alive until we find a cure.
It is hard to ignore Evan’s everyday battles. But he is not alone. On January 25, 2013 our youngest son Brett, then 4, was diagnosed with Type 1 diabetes. This was a very difficult diagnosis for all of the family because we now know first-hand the difficulties that come with this disease. Brett was terrified. Brett is now on a pump and using a CGM. He is a funny, loving and thoughtful boy. T1D will never change that!
Our family also includes TJ who is 12 and Mia who is 8. This disease has taken things from each of them. Quite frankly, I am tired of it. We need to keep the funding coming so that these research efforts can come to fruition. These boys and their everyday trials and tribulations have affected so many. That is why we are working with JDRF to turn TYPE ONE into TYPE NONE.
Type One diabetes carries with it the constant burden of life threatening complications and never ending management. But JDRF has a plan to change all of that. As the largest non-profit funding organization of T1D research in the world JDRF has a strategic plan to progressively remove the impact of T1D from people’s lives until it is no longer a threat to anyone. That is why we support JDRF. They are actively funding the research that will take the burden off of Brett and Evan, their siblings, their family and all families dealing with this disease!
Please support me and donate to my Walk fundraising campaign. Your gift will make a difference for millions of people affected by this devastating, life-threatening disease. Won't you please give to JDRF as generously as possible today?