Connor Johnson

RAISED:

$1,735

GOAL:

$1,000

I'm participating in the JDRF Walk to Cure T1D!

I'm Connor. I am 9 years old and in 3rd grade. I was diagnosed in preschool at 4 years old with type 1 diabetes. A little over a year later when I had just started Kindergarten, I was diagnosed with celiac disease (I cannot eat or be exposed to gluten). 

I look like any other boy my age. I can do anything that any other kid my age can do. I just have to be concerned with things that most kids don't even know about. I didn't do anything wrong, my pancreas just quit working right and stopped producing insulin needed for me to survive.  I wear a pump that's attached to my body and through a little cannula under my skin I can get the insulin I need throughout the day to keep me alive. I also have to check my glucose levels by pricking my fingertips 8-10 times per day..mom and dad do this for me through the night so I can sleep and not have to worry about it.  When I eat anything, even chew a piece of gum, I have to cover my carbohydrates, so we are constantly looking at numbers and working on calculating how much insulin I need. Sometimes regardless of how hard we work, my body just doesn't cooperate. As I go through growth spurts. If I am getting sick. If I get nervous or scared or excited. Exercise and being active is good for my glucose and my health but sometimes can make it really hard to fight off lows that can linger days after certain activities.  All these are things that affect my levels and are beyond our control. I understand that I have to work really hard to stay within a certain range on my glucose in order for me to be healthy and avoid long term complications. It's a very fine line. Most peoples bodies do this automatically for them. 70-130. I have been in the low 20s and so high my meter wouldn't register, over 550, but we continue to try to do our best. 

I don't complain about having diabetes or celiac. In fact, I think my life is good. I do wish I didn't have it, but it makes me who I am. I trust my parents and God to take care of me. I also have some very special friends who help watch out for me. Those are my angels here on earth. 

I walk every year for a cure with JDRF. This raises money to be used for research. I see so many people who come out just for this event. I have my own team, Connor's Caddies, that walk right along with me and for me. It means so much. 

Can you walk with us this year and help raise money for a cure?  If you can't walk, can you help by donating money to a walker, to my team, or just to anyone you know that is walking or in honor or memory of someone special to you? We will be walking on APRIL 12TH AT THE JACKSONVILLE FAIRGROUNDS. 

Thank you with all my heart and my mom and dad's too. 

Love, Connor 

March, 2014








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WALK DETAILS

Date and time

April 12, 2014
Registration: 8:00 AM
Starts: 9:00 AM
Length of walk: 3 miles or 1 mile option

Location

Jacksonville Fairgrounds
510 Fairground Place
Jacksonville, FL 32202

MAP

CONTACT

Candace Monroe

cmonroe@jdrf.org
(904) 739-2101

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