Visit: https://www.youtube.com/watch?v=ofOTwE3f4HU to hear our song!
We will turn Type One into Type None
Welcome to our JDRF Walk to Cure Diabetes Team Page!
It has been almost three and a half years since Lili was diagnosed. Since her diagnosis, she has had over 23,000 finger pricks and 8,212 shots. She doesn't understand the gravity of this disease, but if you were to ask her to describe it, she would say that sometimes she has to eat when she doesn't want to, and sometimes she can't eat when she's hungry. She hates that she can't have treats when her friends do and realized for the first time this year that she would never be able to sleep over at a friend's house. She knows that insulin is the only way she can survive with this disease, but that insulin is not a cure; it is merely life support.
As a mother, there hasn't been a day since that life-changing event back in 2010 that I would not have changed places with Lili in a second. It's incredibly painful to see your child deal with such a serious disease. And, although finger pricks and shots are not something you want for your child, somehow, these are the things you know you can get through. What we worry about is the stuff we can't manage. We worry whether or not Lili will suffer with the complications of diabetes. Will she lose her eyesight? Endure having limbs amputated? Will her liver or kidneys fail? Or worse yet, will she fall into a coma in the middle of the night and never wake up?
If you look at her, she seems like a very healthy child, and in many ways, she is; however, in order to manage Lili's diabetes, we have the impossible struggle of balancing carbohydrates, insulin, and physical activity with uncontrollable variables such as illness, growth, exercise-level, excitement and stress. Every day offers Lili the risk of a drastic low blood sugar that could cause seizures or possibly death. It could only take one mistake on one morning or one afternoon or one night....or it might simply involve a random event from her body. That's why she checks her blood sugar 6-8 times a day, and why we need to check her 2-4 times in the middle of the night. Some nights I'm up until 6:00am.
So many of you have supported us in the fight against diabetes, and we thank you for your generosity. Our wish and dream is that our daughter will see a cure for this life-threatening disease in her lifetime, and it is through the efforts and support from friends like you that we hope to realize this dream.
As Team Captain for Team Lili, I ask you, won't you please join our team this year or consider giving a donation as we continue to search for a cure? The JDRF Walk to Cure Diabetes will be held on Sunday, September 21 at Warner Park in Madison, Wisconsin. JDRF gives more resources to diabetes research than any nonprofit, nongovernmental organization in the world, and nearly 85% of every dollar raised by JDRF is channeled directly into research efforts. Scientists legitimately believe a cure is possible before Lili loses this life-long battle. Your donation could change the lives of nearly 3 million Americans (mostly children) and save our daughter.
Please, won’t you join us in finding a cure for Lili and the millions of others who suffer from type 1 diabetes. Last year we raised an astounding $14,098.48. This year our goal is $10,000. It’s faster and easier than ever to donate online. Your online donation can be made by credit card and is tax-deductible. If you prefer, you can mail your gift check to me at the address listed below. Please make the check out to JDRF and include my name in the “Memo” section.
We would also love to have you join Team Lili and walk with us on Sunday, September 21 at Warner Park in Madison, Wisconsin. Any amount, great or small helps JDRF get closer to its goal to improve the lives of every person affected by T1D by accelerating progress on the most promising opportunities for curing, better treating, and preventing T1D.
Thank you for your suport, and we'll see you on Walk day! Lori, Ben, Isabel, Elena, Lili, Eli, Petey and Daniela Roden