Tyler is 12 yrs old and in 7th grade. He was diagnosed with Type 1 Diabetes (T1D) when he was only 5 years old in pre-school. I am still plugging away at having T1D for 36 years. Same grind, different day. But enough about me. For Tyler, I’m going to call this year the “slowly independent” year.
While Tyler is probably the only 12 year old that still doesn’t have a phone (!), what he does have is A LOT of friends. This summer, Tyler loved jumping on his bike and meeting up with everyone and hanging out for hours at a time. He is very good at always putting in his bolus in while he has a snack, meal, etc and is getting better and better at taking his blood test EVERY TIME before giving his bolus. He is still a boy who doesn’t want to have T1D and sometimes just doesn’t take his test first. I get it. I did that too. What we are working on is reminding him how much better he feels when his blood sugars are good. (This took me until I was in my 20’s to realize… but don’t tell Tyler that!)
This year, I am most proud that Tyler can now change his infusion set to multiple places on his body by himself. What this means is he can remove the old infusion site, prep the new one, fill the reservoir with insulin (with no air bubbles), insert the new infusion set and set it all up in his pump. This skill set has really given him a lot of independence in his management of his T1D and given us so much to be proud of. Tyler is still involved with many activities including football, basketball, baseball, volleyball, track and piano. These activities are always prefaced with an hour or two of prep by Jamie or me in case any adjustments need to be made beforehand.
We had a week this year where is blood sugar got as low as 36 and then 5 days later he was over 500. He was throwing up in the street but still wanted to go to a party (even though he couldn’t eat anything). "I hate diabetes Mom". Me too, Ty; me too. And so goes the daily grind of having T1D. Some days are better than others.
It is because of people like you that there is not just hope, but delivery of life-changing breakthroughs; like the AP system and blood glucose monitoring on cell phones. You can help us fight this disease by supporting Tyler (and me) this year as we take part in JDRF's One Walk. To Turn Type One into Type None. Now, more than ever, you can make a crucial difference. Won’t you please give to JDRF as generously as possible?
Thanks in advance for supporting the JDRF. I really hope there is a cure SOON! Please let me know if you’d like to purchase a Team Tyler shirt and what size. Also, please let me know if you can walk with us this year*. You have no idea how much it means to us when you can.
Sheila & Jamie Chambers
Tyler’s proud parents
*There is NO SJC Football game this weekend!! I would love a huge contingent walking this year!!