Team Captain
 
Mrs. Marisa Langford
Mrs. Marisa Langford
Team Members
JDRF One Walk, Tampa 2020

Putting an End to T1D, One Step at a Time

Our team is SHELBY STRONG! Read more about our journey and why we’d love for you to walk with us VIRTUALLY on Saturday, May 2nd, 2020 for our team's 2nd JDRF Walk in Tampa! We wish we would walk together, but tag us in your pics #ShelbyStrong as you walk around your neighborhood or where it's safe!

AND!!!  We are trying hard to get to $1500!  Our donations will be matched up to $1500 from Lilly Diabetes! We can't thank you enough for your kindness and generosity!

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A little update from our family as we approach the 2 year mark. SHELBY IS THRIVING!!  We have been attending conferences, meeting with nutritionists, learning to cook meals, using new technology to help us manage this condition, playing club soccer (Go Rangers!), getting straight A's and Shelby's health, most importantly is as strong as ever. I still watch in amazement as she changes her DexCom with ease, she fills her OmniPod with confidence, cooks full meals for the family like she's been in the kitchen for years. She knows so much about food, how her body works and yet she still manages to keep a positive attitude about all the work her daily life has involved. 


We choose to share our story with you because sharing information is powerful. And knowledge is power. Knowledge that I will benefit from because someone out there might be able to help me/us. I am also sharing because I want to show others, newly diagnosed parents, my village, my tribe, our friends and family, that we still need your help. I cannot thank our ENTIRE VILLAGE for every call, text, extra set of eyes over Shelby when I can't be there. Her friends are 1 in a million and we know that they love her just for being Shelby. 

This is my story from the beginning.  We've come along way since this day, and I am hoping that the entire diabetes community will continue to grow and continute to fight for everyone with this condition.  It's a life-long medical condition and the costs are high, but the stakes for a cure are even higher.  We hope to see everyone on April 18th!  Wear your blue and orange to show support! 

*****

Shelby had been loosing some weight this summer. We attributed it to a new house with a pool, a bike-able neighborhood, eating healthy, etc. Then came July. Her energy started to slip. More weight cams sliding off. She was tired all the time. She started to complain of belly aches which we attributed to constipation. Because of her Adrenal Insufficiency, many symptoms were masked as they were actual current symptoms of her already pre-existing conditions .  Thirst & frequent urination- were all things that were already present. We had noticed that things weren’t “right” but had attributed it to her levels being off and the current diagnosis. 

THIS IS OUR STORY-

One morning- she threw up. We treated her as we do for adrenal crisis. We went to the doctor. They did some blood tests. Urine tests and determined we needed to go to the hospital ASAP. 


We did.  She was admitted and there was the answer: Metabolic-acidosis. The beginning of Type 1 Diabetes. Holy …. 


Devastated. Mad. Upset. Terrified. Happy. Relieved. Anxious. Furious. Elated. Nervous. So. Many. Questions. 


All the feels. All the rage. All the tears. What does this mean? Well,basically we won the rare disease lottery - twice. 


Three days in the hospital but we finally have a diagnosis. And she’s getting back to normal. Slowly. But surely. 


My first mission- to make her understand that this didn’t happen because of something she did. Or we did. Nope. It just comes on. Yes- some of it is hereditary but not us. She just won the lottery. 


Second mission- to tell her and the kids and our entire family, that this will be ok. (By the way- the HARDEST part of this whole ordeal was telling the kids what the diagnosis was. They were just as devastated as they didn't understand. They all were crying. They are all in this with her and learning too...) But we let them know- we can do this. We are raising 3 kids with one rare condition, so the daily medicine and monitoring isn't really new to us. We already give medicine three times a day to  the kids, we can just add the new routine in. And life goes on. But there's alot more that goes into this...alot. 


And let me give you an update on Shelby.... This kid is a rockstar. She left the hospital knowing how to test her sugars, and give HERSELF HER OWN INJECTIONS!!!!!!!  What?!?!?!!? Seriously. She’s on to her diet, which really doesn’t need too much modification, but there is so much I/we don’t know yet, which is terrifying. I’m trying my hardest to remain positive, but this is a lot…but we can do this.  She's testing herself at school and also giving herself her own shots at school too. She doesn't complain. She doesnt' wince at the shots. She is my hero. We are  a strong family and we will make sure that she gets the best care and lives her best life.  Yes- things will be different and slightly more complex. 


Now- here’s where you come in. We really walking to raise money to fight for so many others with this condition. Over 40,000 are diagnosed each year with Type 1. Research, medicine, laws, things I never knew existed need to be done to help this every who live with this condition daily. For her and her future. 


To all my friends and family who love Shelby as much as we do, thank you for the well wishes, the presents, the words of encouragement, and the love that we feel from you all. It’s a tough diagnosis, but she’s back at school like she didn’t miss a beat. Our school has been amazing and everyone has been so supportive. But there’s always a silver lining. It could have been a different diagnosis. It could have been much different. We know that we are never given anything that we can’t handle. And that just means we must be one REALLY STRONG family.  


We hope to see you on April’s 18th! 


xo

The Langford 6



When you have T1D, your body stops producing insulin—a hormone essential to turning food into energy. Managing the disease is a constant struggle that involves monitoring your blood-sugar level, administering insulin, and carefully balancing these insulin doses with your eating and activity just to stay alive.

With T1D there are no days off and there is no cure. But there is hope.

So, will you join us? Your fundraising or donation not only changes lives for people with T1D but joining JDRF One Walk will change your own life. The inspiration and fun you experience on that day will stick with you, and the pride you can take for your role will last a lifetime.

Thank you for your support.


Love,

The Langford’s 

 
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JDRF One Walk, Tampa 2020

Your support will help fund life-changing research and create a world without type 1 diabetes (T1D).

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